Everyone knows I’m a horrible patient. I’ve chased away more GI doctors, surgeons and doctor’s assistants than I can count. My step-ma says it’s typical for a Crohns patient, that most doctors know we all almost have a personality disorder, but alas. I just dislike doctors and hospitals.
It’s a damn shame that I have to spend so much time in them.
After the last bowel obstruction, my GI finally managed to convince me to have surgery. It only took 5 years and 2 obstructions, I should give him an award. Unfortunately for the rest of the hospital and to the delight of my step ma (a doctor there) I chased away the surgeon that was assigned to me while I was admitted. Then signed out AMA. Like usual.
However, I did finally go in for my surgical consult. Step-ma found me a surgeon that according to her and my GI (the only doctor I haven’t chased away.. not for lack of trying) that I will “mesh with”… ie: not destroy. He seems alright, however it made my day when I managed to make him uncomfortable. After he described the surgery I said “You know um, hey. I kinda lost this gi joe figurine like 3 years ago… when you’re like all… in my intestines and what not… and if you find him… please bring him back. I miss him.” It was like I kicked his puppy. Or first born child. Either way after a good 20 second blank stare and a blush, he laughed. Which means he’s okay in my book. So far.
So here’s the deal. Crohns has destroyed at least a 2 ft section of my small intestine. For some reason, even though the disease has jumped around quite a bit over the years, it’s always hit this section the worst. Said section developed a fistula that attached itself to my bladder. So what I need done is a resection, I’ll lose those two feet and possibly a small portion of my colon, and they’ll remove the fistula and repair my bladder. Yeah. I’m 26 years old and I’m having bladder reconstructive surgery. Oh joy.
Since I no longer have an obstruction, just swelling, it becomes an elective surgery. The surgeon wants it before the year ends, and I want it before the holidays. Nothing like major surgery before Christmas. So I’m aiming for the beginning of December. I’ll be out of work for at least a week, most likely two, but after that, with any lucky, my Crohns will be in remission for a long time. Complete remission. Something I haven’t even had thanks to this damned fistula.
Am I happy about surgery? Hell no! It’s something I’ve literally been avoiding for 5 years. It took major convincing to get me to go on Remicade, even Humira. Whenever surgery was brought up I just walked out of the office/checked myself out of the hospital. However, after 5 years of this, I’m tired. I’m tired of the constant pain, the stomach issues, the 3 year long UTI. I’m tired of hospitalizations every other month and steroids. I’m tired of being sick. Surgery gives me the chance to be healthy, at least for a little while. So even though I’m terrified, I’m going to hop in the saddle and go for it.
You fuckers better come visit me in the hospital.