Entyvio Part One

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So after being sent a bill for $29 grand and many phone calls with my insurance company and financial assistance, I received my first infusion today.  I honestly was really dreading it to be completely honest, I had heard about bad infusion reactions (not longer term side effects) and seeing as how I seem to get every side effect to every drug… It made me nervous.

Apparently, I was right to be concerned. Right after the infusion I felt like I was tired. Halfway home, the fatigue was bad enough that I didn’t want to drive anymore. Shortly after that, headache.  You know, the ones that border on a migraine.  As of a few hours ago, bad joint pain.  I hopped into a support group I joined, specifically for people on this drug and asked.  I guess this does happen and as I had already heard, it lasts a couple of days.

I guess I’m just grumpy about it.  Think about your worst hangover, multiply it by 3, and make sure it lasts.  I get so irritated by the fact that some of the medications I take have more side effects than my Crohns Disease does symptoms.  At least beyond these loading doses, I’ll only have infusions every 8 weeks, but boy is this going to suck in the meantime. 

I really hope this drug works, and works long term.  I could use a break in my medical life… everything else is great, just need my Crohns Disease to get with the program.

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2 thoughts on “Entyvio Part One

  1. Andrea has Crohns

    Im on entyvio too, the side effects are awful. I got my infusion on Friday and ill feel the side effects until Monday. the doctors say it can take up to 14 weeks to work too. just our luck! wishing you all the best, fellow crohnie :)

    • Thanks for the luck! I have my 2nd infusion on Thursday this next week, and my doctor recommended 24 hour Claritian to see if that helps at least a little bit. I’m really hoping so, because they suuuucked.

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