Yes yes, as the previous post stated, my butt is back in the hospital for yet another obstruction with my Crohns Disease. 2nd one this year and it’s only March, so obviously something isn’t right with my body right now. I actually saw this one coming, so I had a bit of time to prepare and plan, unlike the one in January. That one I had absolutely no clue what was going on, I actually thought I had food poisoning, when usually I can tell you exactly where the catscan will find inflammation. Oh well.
Anyway, Monday night, I felt pretty bloated and had some major cramping. I knew right away to lay off the food and wait for the nausea. I’m not one to get nauseous easily (unless I just got an Entyvio infusion apparently), so nausea is usually my “Get-Your-Ass-To-The-Hospital” sign for obstructions. Tuesday morning I was super nauseated and looked like I was 6 months pregnant instead of my normal 4, shut up, I like cupcakes. I forced myself to take a shower, as I know I wouldn’t be able to take one for a bit and it was blantantly obvious I was headed to the ER. I took the monkey to school, called my doctor and went into work to help out while I waited for a call back. My work is the halfway point to my hospital of choice, plus I felt bad that I was leaving them with a mess to clean up.
After a while of no calls from my doctor, I decided fuck it. I felt like hell, I had given them the heads up they always ask for, I was going to just head in. I was nauseated still, but didn’t feel too out of sorts that I couldn’t drive so off I went. I literally made it 5 minutes away and BAM! Puking. I pulled off onto a side street and spewed everywhere. After a few minutes of people driving by and gawking I realized the puking wasn’t going to let up and I had to call 911. (Also, don’t pull over to puke in million-dollar-house-neighborhoods – they get offended…) I had a hard time telling dispatch where I was and out of the 6 or 7 cars I waived down, only one stopped to help. Once I had the address to them, the lady stayed and waited with me until the ambulance got there. After almost puking on a firefighter, I was packed away with 3 of the nicest EMTs I have ever encountered and off to the ER.
On the way there they couldn’t start an IV, so Zofran (an anti-nausea drug) wasn’t an option, so I did my best, and one of them talked me through the heaves. To be completely honest though, I started to get scared. My blood pressure severely dropped (which considering my normal is 90+/50..) and I couldn’t hold myself up or stop shaking. Once my vision blurred, I about lost it and told everyone I was scared. Once I got to the ER, the nurses failed at an IV and I had to wait for the IV team to show up (they blew 3 more non-existent veins) and the nurses stayed by my side because I was still scared.
Let me tell you something, in the 8 years I’ve been sick, 7 years diagnosed, I have never been that scared. I’ve had pretty much everything go wrong with me, but having my blood pressure drop like that and losing control of my body did it. I know my way around obstructions, and this one was not normal. The EMTs even stayed until I was stable (which oh my god, how nice, I’m so buying them sandwiches and dropping them at the station next week).
I guess from what I understand one portion of my intestine in front of the blockage was so dilated that basically my body started to panic. I know that’s not the medical term for it, but I was pretty much high-as-a-kite when they tried to explain it to me. All I know is that I was scared, and I do not like being scared.
So all in all, beyond the thing on the way here, it’s been a pretty run of the mill obstruction. I guess the stricture that keeps causing them is getting really really bad, to where at this point, modifying my diet isn’t really helping much, and it’s not really a question of if I need surgery, but when (hey naysayers, I’m glad I held out this long… the fistula is healed as of now, so no bladder surgery for me you asshats).
After talking with both of my remaining GIs (one of whom I love), and my surgeon, it’s basically been agreed upon that I’m going to see if I can make it through another few infusions (Entyvio takes approximately 10 weeks to work ~ 50% rate of remission) to give the drug a chance to actually get what little inflammation I have left to get the hell out. Then we’ll schedule the resection. The surgeon and I also agreed if I get too uncomfortable at home, or end up back here, that surgery will happen (I about demanded it during puke fest) and I let him know I will not leave until the stricture has been snipped out.
Now I’m not one for surgery, especially for things that have the option of healing on their own (ie: the fistula – which again naysayers, even the surgeons agreed with me on that one). However, this stricture (narrowing of the bowel – ie: scar tissue) is getting so bad, the hole so small that almost nothing can get through. Which limits my diet severely (mainly to overly processed crap that I HATE eating, and I’m not allowed anything from my garden, which makes me want to cry to just think of it) and severely impacts my quality of life. I’m basically getting tired of not only being sick all the time, but now losing things that I enjoy (like my garden). So it’s time I suppose, now it’s just up to my body to see if we can put it off and pre-plan it for during the summer when Ashley doesn’t have school, or if it’ll be immediate with another ER trip. I don’t know.
All I know, is that I’m tired of this, and I want to get better. If I’m going to suffer through the side effects of Entyvio (which STILL SUCK btw), I want the rest of my non-infusion time, to be enjoyable… not stuck in a hospital bed.
Le Sigh. As for now? I just ate my first solid meal, if I can not puke, and there’s no more pain, I can go heal at home, so I’m crossing my fingers. I miss my kiddo (although apparently I’m chopped liver since she’s had sleepovers at her favorite teachers house) and my pets. I want my own bed, my cuddles from my family and a full nights sleep without being woken up for vitals.