As anyone with a Chronic Illness can attest, when you’re lucky enough to go into remission, the first twinge of pain or hint of symptoms can send you into a straight panic. Once you’ve had a taste of living normally again, it’s hard to face the (often times) inevitable downward spiral into all of the stuff you’d managed to put out of your mind for a while.
I’ve been pretty lucky with my Crohn’s Disease. After surgery some odd years ago, minus some smaller flares here and there, I’ve remained in remission. I am especially thankful for that since I don’t think I couldn’t done with a full blown Crohn’s flare when my heart issues first popped up. Anyway. It’s been really nice. Usually being able to eat what I wanted, live pretty much pain free (from that anyway) and just function like a normal adult. Whatever little flares I had, pretty much vanished when I left my previous job. Less stress and all.
However, these past couple of weeks, I’ve been having some of the old symptoms pop up. Urgency, cramps, joint pain, dehydration headaches, you name it. Two days ago, when I felt the ever familiar waves of stomach pain, my heart sank. That’s when I knew it wasn’t just a “mini-flare” that would go away in a few days.
As I was sitting outside yesterday, my mind was just scrambling for comfort and reassurance. When you’re chronically ill, a support net is a necessity, and a lot of us don’t have much of one to begin with. Once you are lucky enough to go into remission, whatever support net you had managed to cobble together, essentially vanishes. To the rest of the world, you’re healed! It’s over!
Then it comes back.
So I sat there, really feeling the need to talk to someone but unsure of who to reach out to. I was just scared to be honest, I still am. It’s hard to figure out who to chat with about how I’m feeling about being sick again.. when so many people had to deal with me being sick for the better part of a decade? There’s massive guilt and shame involved when someone who is chronically ill needs help or someone to talk to. The longer it goes on, then more we feel like a burden to those we love.
Hell, it’s even hard to write about it. I’ve literally been blogging about my Crohn’s Disease on here for a decade. There’s that voice in my head saying: don’t you think people have read about this enough yet? It’s just difficult. It really is.
I guess I’m just writing to get this off of my chest. This sucks.